MDA’s web site is listing three clinical trials that people with Dejerine-Sottas are eligible for. Please note that these trials are not designed to test treatments for Dejerine-Sottas in particular; rather, the researchers are looking to determine the safety of creatine monohydrate in children with neuromuscular diseases, develop a painless, noninvasive, diagnostic technique called “EIM” (electrical impedance myography), and compare biological markers in the blood of subjects with and without amyotrophic lateral sclerosis (ALS).
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Do you experience neuropathic pain from Dejerine-Sottas?
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