Enter your email address and select the appropriate button below to receive email notifications of updates to this site, or remove yourself from the list.

Join the Dejerine-Sottas message board and connect with others affected by Dejerine-Sottas!


Do you experience neuropathic pain from Dejerine-Sottas?

 Yes, often
 Yes, occasionally

View results

7 year-old with Dejerine-Sottas to be featured on Labor Day Telethon

September 2, 2006

Filed under: People

When the Jerry Lewis Telethon airs this weekend on ABC, one 7-year-old who will be featured has a Duluth connection.
Abbey Umali, who lives in Redlands, Calif., has Dejerine-Sottas disease, a rare type of muscular dystrophy that damages the peripheral nerves, which carry signals from the brain and spinal cord to muscles, according to the Muscular Dystrophy Association.
Umali’s mother, Wendi (Waterhouse) Umali, grew up in Esko, while Umali’s grandparents, M.L. Sather and Jim Howe, live in Duluth.
Sather said her granddaughter is tentatively scheduled to appear on the telethon at 11 p.m. Sunday and then again on 12:30 p.m. on Monday.
The telethon starts at 8 p.m. Sunday and ends at 5:30 p.m. Monday.