Representatives of NORD and government agencies including the National Institutes of Health and the Food and Drug Administration will speak at the 2nd Annual Rare Disease Leadership Summit of the Center for Business Intelligence in Washington, DC, next week (December 5-6). For details, go to www.cbinet.com.
Do you experience neuropathic pain from Dejerine-Sottas?
November 29, 2007
September 4, 2005
In a mass email, MDA urged people to consider making a generous donation to the Salvation Army for Hurricane Katrina relief, and a $15 donation to kick-start the Telethon. Jerry Lewis and Casey Kasem will host the 40th annual MDA Telethon beginning September 4th and continuing to the 5th. Check the station listings (.pdf) to find out what channel will be carrying it in your area or watch it online. Remember, if you donate online, you can earmark your donation to go directly to (much neglected!) Dejerine-Sottas research.
“I’d like to announce that we are hoping to host an International Convention in England during the latter part of April 2007. We aim to have this from 26th to the 29th of April–a venue has yet to be finalised. We’re hoping to invite some eminent professionals from around the world–if you have any ideas (and contact details), please do send them to me. As we finalise details, we’ll let you all know more, because it would be lovely if we could have representatives (and members) from all your organisations attending. It’s also the 21st anniversary of CMT United Kingdom, so a party is also planned!!”
April 2, 2005
The American Society for Neurochemistry will be holding its 36th annual meeting from June 24 through 29 in Madison, Wisconsin. The program includes at least one lecture of interest, on Molecules and Mechanisms in Schwann Cell Development.
March 19, 2005
Welcome to the new year. This email is your invitation to the Great Lake Tahoe Charcot-Marie-Tooth Backpacking Adventure of 2005! Or simply the LTA (Lake Tahoe Adventure).
Now, what is the LTA? An overnight backpacking trip into the Tahoe Area wilderness of California. We’ll start at the Big Meadow Trailhead and wind up and around a pine-blessed ridge to the Big Meadow creek and find a camp near flower-packed Big Meadow. We’ll make camp, hang out, eat a wonderful supper, have a fire, sleep and walk back out after the sun has warmed things up. Only CMTers may come along. I’m familiar with this country. To say the least, it’s breathtaking.