Neurologists Come Together to Tackle Charcot-Marie-Tooth

(From the University of Rochester Medical Center.) Neurologists around the nation are working together in a nationwide study focusing on Charcot-Marie-Tooth disease, a painful nerve condition that affects more than 100,000 Americans. The team and its Inherited Neuropathies Consortium is Continue reading Neurologists Come Together to Tackle Charcot-Marie-Tooth

Why medical discoveries don’t become cures

Desperately Seeking Cures How the road from promising scientific breakthrough to real-world remedy has become all but a dead end. By Sharon Begley and Mary Carmichael | NEWSWEEK Published May 14, 2010 From the magazine issue dated May 31, 2010 Continue reading Why medical discoveries don’t become cures

NT3 Gene Therapy for CMT1A Benefits Mice

From MDA’s Quest magazine: Mice with a disorder resembling type 1A Charcot-Marie-Tooth (CMT1A) disease that received a single intramuscular injection of genes for the protein neurotrophin 3 (NT3) showed improvements in grip strength, ability to stay on a rotating rod, Continue reading NT3 Gene Therapy for CMT1A Benefits Mice

Decoding DNA

PBS’ To the Contrary, hosted by Bonnie ErbĂ©, has developed a three-part series called “Decoding DNA: Helping Children With Rare Diseases.” The program looks at genetic mapping and finding cures for children with rare diseases like Charcot-Marie-Tooth Disease. To view Continue reading Decoding DNA

University of Miami center seeks diseases’ origins

A new Miami Institute for Human Genomics, which will search for genetic origins of common diseases such as autism and Alzheimer’s, opened its doors Tuesday to great expectations. Its purpose: changing the way medicine works. ”The future of medicine depends Continue reading University of Miami center seeks diseases’ origins

A message from The Hereditary Neuropathy Foundation – Happy New Year!

Our resolution at HNF-cure.org is to increase the amount of NEW CMT information for YOU – starting now! In a positive direction, we have enhanced our staff with experienced writers and have established procedures to ensure that new information is Continue reading A message from The Hereditary Neuropathy Foundation – Happy New Year!

Congressional Committees Again Urge More Neuropathy Research

For the second consecutive year, the appropriations committees of both houses of Congress have approved specific language written by The Neuropathy Association urging the National Institute of Neurological Disorders and Stroke (NINDS) to strengthen its research portfolio for peripheral neuropathy. Continue reading Congressional Committees Again Urge More Neuropathy Research

Booklet is ready and more news from HNF – October 2005

The following is from the Hereditary Neuropathy Foundation‘s October newsletter: We’re pleased to announce that our patient information booklet is now available for distribution to our registered HNF members. This high-quality production presents an in depth overview of the common Continue reading Booklet is ready and more news from HNF – October 2005