Dejerine-Sottas

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9-year old hurdles her disability to be in PossAbilities Triathlon

April 27, 2008

LOMA LINDA – Abbey Umali does not care if she comes in last place.
The 9-year-old girl is just happy to compete in the sixth annual PossAbilities Triathlon today at Loma Linda University.
Abbey – who has a rare form of muscular dystrophy – will compete against other able-bodied athletes in her age group.
“First, we run, then we bike, then we swim,” said Abbey, the Muscular Dystrophy Association’s 2008 National Goodwill Ambassador. “It’s really fun.”

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California Girl Named 2008 MDA National Goodwill Ambassador

January 8, 2008

Jerry-Lewis_Abbey-Umali.jpgThe Muscular Dystrophy Association’s 2008 National Goodwill Ambassador is Abbey Umali of Redlands, Calif., a lively and articulate 8-year-old with a form of Charcot-Marie-Tooth disease.
Abbey is the first MDA national goodwill ambassador to hail from California in the program’s 55-year history. She and her family will travel the country throughout the year, representing families affected by neuromuscular diseases and served by MDA, participating in special events and meetings of national MDA sponsors and speaking with the media.

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