Neurologists Come Together to Tackle Charcot-Marie-Tooth

(From the University of Rochester Medical Center.) Neurologists around the nation are working together in a nationwide study focusing on Charcot-Marie-Tooth disease, a painful nerve condition that affects more than 100,000 Americans. The team and its Inherited Neuropathies Consortium is Continue reading Neurologists Come Together to Tackle Charcot-Marie-Tooth

Why medical discoveries don’t become cures

Desperately Seeking Cures How the road from promising scientific breakthrough to real-world remedy has become all but a dead end. By Sharon Begley and Mary Carmichael | NEWSWEEK Published May 14, 2010 From the magazine issue dated May 31, 2010 Continue reading Why medical discoveries don’t become cures

Dr. Michael Shy to lead $6.25 million NIH research program on Charcot Marie Tooth

The National Institutes of Health announced recently a second phase of the Rare Diseases Clinical Research Network totaling $117 million which includes funds for 19 research consortia. Wayne State University received a five-year, $6.25 million research consortium grant from the Continue reading Dr. Michael Shy to lead $6.25 million NIH research program on Charcot Marie Tooth

CBI to Host Rare Disease Leadership Summit

Representatives of NORD and government agencies including the National Institutes of Health and the Food and Drug Administration will speak at the 2nd Annual Rare Disease Leadership Summit of the Center for Business Intelligence in Washington, DC, next week (December Continue reading CBI to Host Rare Disease Leadership Summit